Detroit Lions Vice President of Football Administration, Mike Disner, is using his platform to raise awareness for a rare disease that affects his daughter. Disner’s daughter, Emily, was diagnosed with Friedreich’s ataxia, a debilitating and progressive neurological disorder that affects the nervous system and can cause damage to the spinal cord, peripheral nerves, and the brain.
Friedreich’s ataxia is a rare disease that affects only about 1 in 50,000 people in the United States. There is currently no cure for the disease, and treatment options are limited.
Disner is using his role with the Lions to raise awareness and funds for research into Friedreich’s ataxia. He has partnered with the Friedreich’s Ataxia Research Alliance (FARA) to help spread the word about the disease and to raise money for research.
“It’s a tough disease, and it’s tough to watch your child go through it,” Disner said. “But we’re not giving up. We’re fighting for Emily and for all the others who are affected by this disease.”
Disner has been instrumental in organizing several fundraising events, including a charity golf tournament and a benefit dinner. He has also worked with the Lions organization to raise awareness about Friedreich’s ataxia through social media and other channels.
The Lions organization has been supportive of Disner’s efforts, and several players and coaches have gotten involved in the fundraising efforts.
“We’re proud to support Mike and his family in their fight against Friedreich’s ataxia,” said Lions Head Coach, Dan Campbell. “It’s a great example of the kind of community and camaraderie that we value in our organization.”
Disner’s efforts have already made a significant impact, raising thousands of dollars for research into Friedreich’s ataxia. But he knows that there is still much work to be done.
“We need to keep pushing forward and raising awareness about this disease,” Disner said. “We need to find a cure, and we need to do it now.”
_Key Facts:_
– Mike Disner’s daughter, Emily, was diagnosed with Friedreich’s ataxia, a rare and debilitating neurological disorder.
– Disner is using his role with the Detroit Lions to raise awareness and funds for research into Friedreich’s ataxia.
– The Friedreich’s Ataxia Research Alliance (FARA) is partnering with Disner to raise awareness and funds for research.
– The Lions organization is supporting Disner’s efforts, with several players and coaches getting involved in fundraising events.
– Disner’s efforts have already raised thousands of dollars for research into Friedreich’s ataxia.